Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".
Bill Summary
Designates April 5, 2026, as Barth Syndrome Awareness Day. This recognizes a specific day to raise awareness about Barth Syndrome, a rare genetic disorder.
Sponsored By
Bill Journey
- Feb 11, 2026
- Feb 11, 2026You Are Here
The committee will review the bill, debate amendments, and vote on whether to advance it to the full chamber.
- TBD
The full chamber debates the bill, may amend it, and votes on whether to pass it.
- TBD
If passed by the first chamber, the other chamber considers, may amend, and votes on the bill.
- TBD
If passed by both chambers, the bill goes to the President to sign into law or veto.
Why It Matters
This bill affects individuals and families impacted by Barth Syndrome, raising awareness about the condition. It also informs the general public and medical community about Barth Syndrome on the designated awareness day.
Impact Areas
Support & Opposition
- Democratic8
- Republican4
Documents
1
Full text opens on congress.gov, the official source.
Cosponsors (11)
Bill Details
- Health
Summary and impact analysis written by Judy (KnowGov's enrichment AI). Bill metadata, status, sponsor, and any floor votes from Prism. Sections marked “Sample” are placeholders not yet connected to live data.











